It's been a few days and we have learned some new info about Jack's treatment, so we thought it was time for a blog update!
Dr. Sproat met with us this week with the rest of the results from Jack's first bone marrow biopsy. She informed us that because of the genetic code that was uncovered, Jack will need to have a stem cell transplant to give him the best chance at curing his leukemia. The doctors knew this may be a possibility back when he was first diagnosed, so they had his sister Traci tested to see if she is a match. Her test results have come back and she is not a match. However, with Jack's heritage, the doctors are not concerned with finding a match for him on the national donor registry.
The time line for Jack's treatment is up in the air as we are waiting to find a stem cell match. What we do know is that until the transplant, he will need to continue chemo periodically to keep his stem cells dormant. We also know that Jack needs to be in remission before the transplant, and he had a bone marrow biopsy on Friday to determine whether he is or not. We should get those results early next week.
Many people have been asking what they can do to help, if they can be tested to see if they are a match, etc. Dr. Sproat advised us of a couple of things that people can do.
1- Donate blood (there is a national shortage). Jack has received about 10 bags of blood and 12 bags of platelets since this process began, and will likely need many more bags throughout the course of his treatment.
2- If you are comfortable with it, register to donate bone marrow and stem cells at bethematch.org. From that site you can order a kit that includes everything you need to complete initial testing where you will swab the inside of your cheek. That is all it takes to be added to the registry, but if you could be a potential match for someone, you will be contacted for further testing through your blood.
We know that both of these options may not directly affect Jack's treatment, but could mean the difference for someone in a similar situation. A few of our friends in AZ are in the process of organizing a bone marrow/stem cell registration drive. More details on that to follow!
In the meantime, Jack's outlook is the same. He is still staying active, keeping up with work, and hosting golf tournaments in his room. He really appreciates all of the cards, letters, snacks, books, support and love he is getting from all of you! Thank you!
Thanks for the update Emily-heard that there are people being tested this week which is wonderful. Thinking of you too-you must be exhausted so take care of yourself.
ReplyDeleteI didn't know that- that's great news! Thanks Debbie :)
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